I am starting to really question this PORT as they had to stick me twice again Tuesday! Apparently when they stick you they are suppose to see s small amount of blood flow come back in the tube. This did not happen so they took it out and stuck me again yet again no blood flow. Between the two, they tried to flush it to make sure it had not clotted but that seemed okay. After the second try they decided to not use the port and go in through an arm vein instead.
After chemo, I had to go get a Port scan done where they injected dye into it to see if it was working properly or not. This all checked out fine so hubby just came to the conclusion that I must be a zombie!
I always feel fantastic the day of chemo and actually have a little energy to get things done. This continued into Wednesday where we had our new washer and dryer delivered. I was actually able to clean off the snack counter, get 3 loads of laundry done, fed the chickens and even made dinner.
Thursday and Friday I crashed and felt like crap for the most part, although Thursday was the worse! I felt like I had a good case of the flu, my hair started falling out all over everything and I went to bed by 7pm and slept all the way to 7am! I also felt like I had walked across a desert where my mouth was so dry and I was so thirsty all day! Friday was a little better but I still did not feel good.
Hubby shaved my head Friday, but I found my scalp to be really sensitive and it actually hurt to have him shaving my head. But it could not be helped as my hair was falling out so bad it was getting all over everything and constantly getting in my mouth even! YUCK!
All in all though I think it went pretty good and it looks like I will just have to adjust to the couple days of not feeling good and staying in bed for the most part for those 2 days afterwards that I do not feel well.
Today is Saturday and I woke up feeling half way decent so I am looking forward to a good day!
On a side note, for now they are only going to be doing chemo every other week until they think my liver can handle a weekly basis. I guess my labs were much better but still not to where they want to see them concerning my liver so they are playing it safe for now.
They also got it arranged so I can get labs done here locally to ease up on all the driving we have been having to do, so that part will be really nice!
Have a good weekend everyone!
After chemo, I had to go get a Port scan done where they injected dye into it to see if it was working properly or not. This all checked out fine so hubby just came to the conclusion that I must be a zombie!
I always feel fantastic the day of chemo and actually have a little energy to get things done. This continued into Wednesday where we had our new washer and dryer delivered. I was actually able to clean off the snack counter, get 3 loads of laundry done, fed the chickens and even made dinner.
Thursday and Friday I crashed and felt like crap for the most part, although Thursday was the worse! I felt like I had a good case of the flu, my hair started falling out all over everything and I went to bed by 7pm and slept all the way to 7am! I also felt like I had walked across a desert where my mouth was so dry and I was so thirsty all day! Friday was a little better but I still did not feel good.
Hubby shaved my head Friday, but I found my scalp to be really sensitive and it actually hurt to have him shaving my head. But it could not be helped as my hair was falling out so bad it was getting all over everything and constantly getting in my mouth even! YUCK!
All in all though I think it went pretty good and it looks like I will just have to adjust to the couple days of not feeling good and staying in bed for the most part for those 2 days afterwards that I do not feel well.
Today is Saturday and I woke up feeling half way decent so I am looking forward to a good day!
On a side note, for now they are only going to be doing chemo every other week until they think my liver can handle a weekly basis. I guess my labs were much better but still not to where they want to see them concerning my liver so they are playing it safe for now.
They also got it arranged so I can get labs done here locally to ease up on all the driving we have been having to do, so that part will be really nice!
Have a good weekend everyone!
I'm glad for you that chemo #2 is behind you. And especially relieved for you that your lab work can be done locally. Know that there are a lot of people praying for you!
ReplyDeleteThankyou Lili, everyones support and healthy energy sent my way has been very appreciated and felt!
DeleteWhen I had chemo several years ago the port didn't work too well. I thought it was just in my case, but perhaps it's often that way. I lost my appetite and the only thing I liked was Taco Bell's crunchy tacos supreme.
ReplyDeleteI have heard they work wonderfully when they work properly but no clue how common it is that they don't. Whats up the the Tacos? Thats almost ALL I want is those stupid dorito taco supremes! :)
DeleteWell those Dorito tacos are pretty darn amazing. I am an proven expert in weight gain. I have years of experience. Let me know if you need any tips;)
DeleteI hope you are able to indulge in the tacos. Listen to your body. Keep up those positive thoughts and soak up all that love and strength from your family gives.
Terri H.
Carrie, I came across your blogs while looking up homeschool blogs. I recognized your name from the homeschool group you had.
ReplyDeleteI am so sorry to hear you are ill. I cannot imagine what you must be feeling both physically and emotionally. You are living many peoples greatest fear. I think it is brave of you to blog this journey. I just read through the last few months of this blog. I could not hold back the tears reading about your husband shaving you hair. I know this sounds strange but it was heartbreaking and beautiful at the same time. In my mind it represented that you were in charge of what happens and he was going to fight right along with you.
Know that you and your family are in my thoughts and prayers. Even though I only met you a few times I know that you are a tough little cookie :) Take care.
Terri H
Thanks Terri, your heartfelt comment is appreciated, I remember you and your beautiful daughter very well. Yeah, hubby has been by my side fighting right along with me, don't know what I would do without him :) he has been a blessing, as well as my kids through out all of this.
DeleteHope you and your family is doing well, best wishes sent your way. Thankyou for keeping us in your prayers and thoughts.
Losing the hair was weird. I had a buzz cut so night one I'm on the couch with the boys and the photo looks like we all have the same haircut. :) I dried my fuzz with paper towel so it wouldn't get in the drain. Still bummed that it seemed head hair was all I lost. Why not the chin stragglers?
ReplyDeleteSorry to hear that your port is not behaving properly. They are so wonderful when they do.
Sheila- Escanaba
I don't mind so much losing the hair although it makes me colder than I already was even wearing a hat! Come to think of it, not losing my chin stragglers either!
DeleteHang in there! You are so amazing, I'm in awe of your positive attitude. Sending prayers and happy thoughts from the Pacific Northwest,
ReplyDeleteLilypad
Thankyou Lilypad, your comments are always so uplifting. I learned in my late 20's the ONLY way to living a happy life was with a positive attitude, seems so much easier than crying when things get tough. :) Hope you are having a beautiful weekend!
Delete